🔬 Advancing CHD Science 🔬

Funding Research That Saves Lives

A program brought to you by Invisible Warriors — a CHD awareness and support brand created by a CHD heart mom, fighting for every child whose battle goes unseen.

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💙 WHY THIS PROGRAM EXISTS

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Our daughter Amelia was born with a de novo FLNC variant — a rare, spontaneous genetic mutation with no roadmap, no clear prognosis, and no guarantee of what tomorrow looks like.

When we asked what her future held, the answer was one no parent should ever receive:

We don’t know.

There is not enough research. Not enough data. Not enough answers.

And then we learned something that stopped us cold —

There is no cure for Congenital Heart Disease.

Not for Amelia. Not for the 1 in 100 babies born with a CHD every single day. Not for the millions of children and adults navigating a condition that medicine has never fully solved.

So we made a decision.

We are going to change that.

Starting with Amelia. And then every family that comes after her.

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🔬 WHAT IS ADVANCING CHD SCIENCE?

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Advancing CHD Science is a targeted research funding program dedicated to studying the FLNC de novo variant and genetic mutations like it — funding cure-focused research that gives children like Amelia the answers medicine has never provided.

We fund milestone-based, controlled research — meaning every dollar is tied to specific, measurable goals with full accountability. Researchers receive funding in increments as they hit defined progress points, ensuring your donation produces real, validated results.

No vague promises. No funds lost in overhead. Just science moving forward with purpose — toward the day CHD has a cure and every baby has a fighting chance from day one.

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💙 WHAT WE FUND

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💙 Dedicated study of the FLNC de novo variant and its long-term impact on CHD patients

💙 Research into rare, unknown genetic variants like FLNC that currently have no clear prognosis

💙 Genetic data collection to build a knowledge base for future families who receive this diagnosis

💙 Real-world treatment and care recommendations so doctors have a protocol — not just uncertainty

💙 Cure-focused research — because managing CHD is not enough. Our children deserve better.

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💰 YOUR DONATION HAS REAL IMPACT

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Every dollar you contribute is not just funding research.

It is funding Amelia’s future.

It is funding answers for every child born with an FLNC variant after her.

It is funding the day a parent hears the word cure for the very first time.

That day does not exist yet.

Your donation helps build it.

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🎯 OUR COMMITMENT TO YOU

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Every initiative we fund must be practical, validated, and focused entirely on real-world applications that improve and ultimately save the lives of children living with CHD.

Because these children are not question marks.

They are not just survivors.

They are warriors — and they deserve a world where CHD is no longer a life sentence.

We are not done until there is a cure.

💙 Donate today. Fund the science. Find the cure. 💙