After our founders walked the Congenital Heart Disease journey with her own child, she experienced firsthand how quickly families are overwhelmed — emotionally, financially, and mentally.
Hospital stays, lost wages, medical equipment, food costs, and everyday bills don’t stop when your child is fighting for their life. Yet so many families are left to navigate these challenges alone.
Invisible Warriors was created to fill those gaps.
These programs were built from lived experiences — to provide real, tangible support so parents can focus on what matters most: being present for their child.
Below are the 7 core programs designed to support CHD families with compassion, dignity, and hope.
Congenital Heart Defects affects every 1 in 100 babies, with a new diagnosis every 15 minutes, in the U.S. alone - that's over 1 million worldwide. Sadly around 1 in 4 children with CHD don't survive. with your help, Invisible Warriors can provide essential support, resources, and comfort to families facing this journey.
• Campaign Title: Gas & Groceries Program
• What it does for families: This program supports CHD families with gift cards for food and gas while their child is in the hospital. Between hospital cafeteria costs, gas money to get back and forth for appointments, and the loss of a normal paycheck during an admission, everyday essentials become one more thing to worry about. This program helps cover that so families can focus on their child instead of how they’re going to eat or get there.
• Campaign Title: Fueling CHD Parents Through The Hardest Days.
• What it does for families: Fueling CHD parents through the hardest days. This program provides gift cards to coffee shops for parents running on minimal sleep while their child is in the ICU. Anyone who’s spent a night in a hospital chair knows what sleepless really means — this is a small way to help parents keep going through the nights that never seem to end.
• Campaign Title: Until We Meet Again.
• What it does for families: his program is for the mamas who have lost a child to CHD. It funds a custom memory bear, weighted to match their child’s exact birth weight, made from their child’s own clothing. One paw is embroidered with their name and birth weight; the other with their diagnosis. It’s a way to hold what can’t be held anymore.
• Campaign Title: No Warrior Left Without Christmas.
• What it does for families: This program is for families currently in the hospital who can’t afford Christmas — because lost wages, medical costs, and the reality of caring for a child with a congenital heart defect have taken everything they had left to give. No family should have to choose between their child’s recovery and their child’s Christmas.
